Focal point

Truth can be very harsh.   Reality can be daunting.   Caregiving long-term brings these harsh, daunting truths to life whether you want to see them or not.

I have been a "muscle through" kind of person, a never-give-up kind of person, the glass-is-half-full kind of person, there is always a plan for the plan for the plan that might fail.  Backups for the backups, as my son talks about in the computer world.  

As I mentioned in my last post, this valley where we have been residing in the last year has been overcast, dark, and very dim.  The days pass by in a filter of hazy, structured darkness or fog; almost a negative smogginess.  It's hard to focus on anything else but trying to see clearly the next thing that crosses my path.

I know my role in this valley time:  to give loving care on any level needed, render aid and assistance at all times, think for, act for, protect, respond, adjust, be flexible, be proactive, advocate, remember everything...and the list goes on.  I'm never off "the clock."

Day after day -- the role never changes and that is where the weariness sets in and sucks the positivity and joy out of me.  Everything, every decision and action is filtered through the lens of what is best for the person dying.  One easily loses their own joy, zest for living, and life, as the memory of what life was like before becomes lost in the fog of what is and is to come.

Friends get tired of hearing of the darkness....and how small the world around me has become.  It almost seems like the mountains are moving closer together on some days:  and the valley gets narrower and narrower.  Life for others keeps moving forward....and here in the valley of the shadow of death -- time seems to slow down.  Every day is a "Groundhog Day" of taking vitals, talking with medical professionals, scheduling appointments, driving to appointments, trying to figure out if there is anything left in their magic bags of medicine to help.

A harsh reality exists when the magic bag of tricks is empty or doesn't exist anymore.

As a wife, I am torn inside my mind and heart with what I see:  the daily, excruciatingly slow, impending decline.  Life has changed for both of us.  Gone is the person that I married.  The disease robs me of that person.  He looks at me, and I am the same -- but different -- if he remembers anything about who I really am.  I look at him, and he is not the same in any way, except the color of his eyes.  

The knowledge there is nothing left to "fix" is the daily reality and what life is right now...

Each day reveals the struggle is that disease is winning....not just in him, but in me too.

I can't let it take me too.

Finding the strength to fight for my own survival when I'm already depleted is challenging, but I must fight because I know the length of the valley won't last forever.  Life will continue.  So searching for a glimmer of light each day is paramount, or I could get lost in the valley of the shadow.  

And that's what I fear the most.

Help! I'm stuck!

All right.  You might not know this about me, but I tend to get stuck.

After living on the farm these past two years, I think I have now found every soft spot and underground spring -- and sometimes obvious marshy places -- on the farm.  And I have a propensity to get the tractor stuck as I am mowing.

I love to mow.  I have no idea why -- but I love mowing.  Hop on the tractor, rev up the engine, turn on the blades, and mindlessly go back and forth over grass that is higher than the "acceptable length" in my eyes and create the most wonderful fragrance in the outdoor world:  fresh cut grass.

Okay....as you are groaning and I am smiling, let me get to the point of my thoughts before you run out to the garage and try to start up your mower in February.

I also love to organize.  One of my winter projects was to clean out files in my file drawers.  I only have two -- so it shouldn't be a hard task, right?  I got together all my tools -- trash bag, new file folders, and organizing tabs and clips and brought out the first huge file of paper and stopped.

Viewing the contents of the file brought back old feelings, situations, and in my mind's eye, I was right back in the old place of my journey that this paper represented.  Let me tell you this:  I got stuck. 

As I was reflecting and reading the file the questions begin to roll:  To toss or not to toss?  THAT is the question!

If I hold onto something that doesn't bring joy, what good does it do me?  What good does it do my spirit and my psyche in this new part of my journey?  Let me tell you -- deciding whether or not to toss those memories was extremely hard!  I had things dating all the way back to foreverland in that file drawer!  All kinds of questions zipped through my brain.  Did tossing the negative things stored in that drawer mean they never happened?  If I kept only the good things and I died and someone else had to go through the drawer would they think I lived a "charmed" life and not get a realistic picture of my struggles?  (Yes, that was one of the things I really thought.)  What would my life look like without certain memories in that drawer? 

As hard as I could, I tried to equate cleaning out the drawer to mowing...and not getting stuck.  I didn't want to get stuck in the bad memories or things that represented mistakes or errors in my journey.  And I realized that if I learned my lesson well, I didn't need to keep a reminder of that time.  The lesson was learned.  I needed to move on and not focus back there on that time I got stuck in the spring that I KNEW was there because I had gotten stuck the last time I rounded that area of the fence line.  I just needed to remember that the underground spring was there -- and avoid getting stuck by rehashing the last time I got stuck.   I needed to recognize when the front wheels started getting wet and stop - and back up -- and go around that area.  Lesson learned.  No need to sink in that hole again. 

Did I need files of memories to not get stuck again?  Nah. 

Realizing that I could avoid getting stuck in that same old thought process, same actions, same rehashing of old times that didn't extend grace to myself or someone else was not helping me in my footing on THIS hill I am climbing; on THIS part of my journey.   So I finally did what I needed to do and cleaned it out.

I left room for new memories -- new files -- good and bad because the cleaning process is usually not a once and done project for me.  I am always finding things I should have "thrown out" but wasn't quite ready.  Now I am ready.  Ready to see the deep grooves in the mud and not go there anymore.  Ready to recognize the rut in my thinking and speech and actions.

Ready to mow, anyone?

No matter what

I've not written for a while.  Sometimes the scope of the path doesn't allow for times of quiet reflection.  Sometimes the rocky terrain of the journey forces you to pay attention to the path at hand and reflection is forced to wait.  My journey has been like that for me in the past few months.  When that happens, however, I long for times to sit and process.  My head is full of stories, and my heart is full of emotion.  The two don't always jive, honestly, my heart and my head.  It's on days like this, where I just HAVE to process, that I find a place to sit on the path no matter what is going on around me, and no matter where I am on the path.

I choose to sit and think and feel.

At times it is overwhelming all that comes to the surface.  It is almost as if I have my feelings chart in front of me, and the assignment is to circle what I am feeling at this moment.  As I contemplate the chart, I end up circling almost every feeling in every column!

So I sit and think and feel and try to sort those feelings into truths, and drown out the stories that my mind and heart tell me which aren't true.

Being honest with myself is a gift I give to myself -- No matter what.

A Unique Perspective

I think about relationships a lot.  We humans are complex beings!  We desire to be loved and be in communion with others and yet at times it seems like there is nothing more challenging than being in relationship with someone else.

I am learning that as I am in relationship with someone else (any type of relationship) no matter how close I get to them, how  much I know them,  how much time I spend with them or how much I want to change their perspective the fact remains that their reality is not my reality.  They come into our connection with their own perceptions, history, thoughts and emotions which leads them to perceive differently than me.

This is a hard lesson to learn because often I think that being loved and accepted equates the need to agree with me and see things from my perspective.   I am learning that there is no sweeter love than to be in relationship with someone and to not have to agree or see things from the same vantage point.

Why is it that I equate love with agreement?  Why do I often feel that if someone doesn't agree with me that they don't like me?  At times, why have I at times put up walls around me shutting out those that don't agree with me?  Do I make others feel unloved when I don't agree with them?  These are hard questions that have been swirling around in my mind.

I hope that I convey an air of wanting to understand as different viewpoints are shared.  I hope that the basic love I have for another human comes shining through as I listen.  I hope that I validate what they are saying and aim for understanding their perspective.  I also hope that I am able to convey my thoughts without excuse or persuasion.

There is a vulnerability and intimacy in relationships where thoughts, feelings and logic can be shared openly while coexisting with an underlying foundation of seeking to understand.  It's amazing to me the freedom that comes with a place of feeling totally loved and accepted, yet not agreed with.  One feels as though they are accepted for who they are and there is a freedom to be who you are without masks or cover-ups.  In life there is usually more than one perspective and recognizing that truth helps us to remember -- one perspective doesn't have to be right and the other wrong.

Acceptance does not mean agreement.  In this instance, acceptance does mean that you can be in the same room with someone , engage in conversation with them, even hang out and do things with them and you don't have to support their viewpoint.  Acceptance means that you can love someone -- even LIKE  them and come from two different directions on an issue.

Mary Anne Radmacher in her book Live Boldly tells this story.   "When my friends Suze and Jonathan got married, I gave them an unusual gift - a pair of opera glasses outfitted with prisms instead of long-distance lenses.  I told them to use these glasses when they were having a disagreement.  Why?  Because a prism provides so many different images of a single view.  It is a literal reminder that while one thing may be the subject of the argument, there can be so many different ways of looking at it." (C 2008 by mary anne radmacher:  pg 21)

I love that tangible picture.  Now when someone disagrees with me, I am reminded to hold their perspective up to the prism -- and not feel threatened or afraid that my perspective is wrong.  It's just one way of thinking about it out of many.

No longer and not yet

As a music teacher, part of my job is to teach rhythm.  For many students the notes come easy and the rhythm is hard.  For others, the rhythm comes naturally and learning the notes is a battle.   I love teaching rhythm.  I teach the student to verbalize the rhythm, clap it, tap it and play it.  It is easy to make games and make learning fun.  After awhile I let the students tap out the rhythms on their own, looking at a pattern of notation.  I find that one of the hardest things are for students to observe the rests in the pattern.

Silence is a powerful tool in music.  The space between sounds and notes can make one hungry for more.  It can make also make an impact leaving time for one to think about what has come before the rests.  Rests of any length create an energy, stopping the flow of sound.  Without the rests music would not stop from beginning to end.

I have learned a lot about myself in the past couple years.  I actually keep a list to review for a couple reasons:  one, because there has been much to absorb and two, it is hard to remember everything and keep it fresh.  Learning and integrating what I have learned takes reminders.  I have found not all lessons are learned the first time.  Not all characteristics are noted cognitively and internalized in one circumstance.  Not all emotions can be analyzed until the tide of emotion has gone out and thinking has taken place in a more peaceful moment.  Sometimes it takes repeated tries for a new skill or awareness to sink in.  Being human can be frustrating (spoken like  a closet perfectionist)!

One thing I have learned about myself is that I can be impatient much like some of my music students and not want to honor the space between no longer and not yet in my life.

So much can happen in that space.

Processing.  Peace.  Breathing.  Sleep.  Joy.  Being mindful.  Listening.  Forgiveness.  Acceptance.  Silence. 

If I get impatient or excited and want to move to the next thing, or shorten the period of rest to a shorter rest than what is deserved, then I miss the impact that the rest can have in me.  I not only will miss the impact, but might not learn the entire lesson I need to learn.  I am learning that a fermata (a hold) over the rest, the space that is between what was and what will be is something that doesn't stop the growth in my life, but accelerates how cognizant I become of what I am learning.  Resting allows me to be mindful of the lesson and gives me the time to integrate what I am learning.  It forces to me wait on my myself or others and not move on to the new thought, the new habit, the new issue that needs to be addressed.

Some people call this place the waiting room.  Some people call this a plateau.  Some call it a rest.  I call it the place between what was and what is yet to be.  Regardless of what you call it...the value of honoring that space is undeniable.

Lesson from Woolly Worms

I think the woolly worm is my favorite worm of all.   (Okay, typing that statement is weird!)

I am thinking about the woolly worm because I have seen so many lately.  My husband, Paul, and I like to ride bikes.  We have a certain route we take when our time is limited and on that route I notice things as I ride.  I notice crickets and grasshoppers, drying corn in the fields, the color of the leaves on the trees on the mountainside, the traffic (or lack thereof) on the route, the eggplant field and so much more.  But what has amazed me of late are the  woolly worms that have crossed my path on that route. 

Now, as a kid, when encountering a woolly worm, I would hold it and pet the spiky "fur" (or whatever it is called) and especially take notice of the color of the worm.  I have been told that a total black woolly worm means a cold harsh winter with lots of snow.  Brown woolly worms forecast a warmer, mild winter.  Woolly worms that are brown and black forecast an early cold or a mid-season warm and then a cool down again -- or the opposite depending upon where the black and brown are on the worm.

I must say, that the worms I have seen on the last few bike rides have blown my childhood weather forecasting basis right out of the water!  I have seen on the same ride one black woolly  worm, one brown woolly worm and at least one brown/black combo woolly worm.    HOW CAN THAT BE????

As I was riding along today thinking about this, I decided that there was a message for me in the woolly worms I had seen.  That message was that no one can forecast the future.   We might have indicators from nature about the weather (red sky at night sailor's delight/ red sky in the morning, sailor's warning), feel a cold coming on, but when you look into the future -- each day brings what it will bring and no one really knows what is coming next. 

What does that mean to me?  Live today in the moment.  Enjoy each moment.  Don't look for forecasts for this or that in life -- signs or woolly worms to tell me what is coming;  but get up, look at the sky and enjoy the sun/rain/clouds/fog/snow -- or whatever it might bring.  Get up in the morning and hug my husband and kids, tell them I love them -- and look forward to the adventure each day brings - come what may.  

Why do we avoid endings?

This week I have been thinking about endings.  I have been wondering a few things so I will put them in first person:  one -- why do I struggle finalizing the end of things -- projects, papers, tasks, et cetera?  two -- why do I think there is something still left to salvage when there is a clear need for more??  three -- why do I not like to say good-bye?  four -- why do I fear endings?

I find it hard to finalize projects because in my mind there is always more -- more to learn, more to perfect, more to strive for, more to write, more to think, more to discuss, more to catch..fill in the blank, more.  It's not the thought that it's not good enough - there is just MORE.  I can hold that note longer, have more resonance, find the perfect piece of art for that spot, make the recipe a little better, gain more confidence, find the connection more deeply....there is always MORE.

There is a part of me that doesn't think on empty -- I look at a glass with a few swallows of water in it as a waitress comes by and asks if I want more -- and I think to myself -- no, my glass isn't empty!  I don't need a refill yet.  It's the same feeling with leftovers -- if there is anything left - why make something new until you have eaten what is left from before?  If there is one more paper on that notepad...don't throw it away -- use it before you open a new one.  One more tissue - one more squeeze of toothpaste...you get the idea.

I find it hard to finalize projects because in my mind there is always more -- more to learn, more to perfect, more to strive for, more to write, more to think, more to discuss, more to catch..fill in the blank, more.  It's not the thought that it's not good enough - there is just MORE.  I can hold that note longer, have more resonance, find the perfect piece of art for that spot, make the recipe a little better....there is always MORE.

Then my mind goes to good-byes.  I would rather say "See you soon!"  "See you later!"  "Until next time!" than say "Good-bye!".  This is something I am noticing in myself that I wonder about.  Good-bye seems final.  Good-byes to people that I love, are just plain hard.  Closing down my studio time after time of moving from place to place to start again has been just plain hard.  Seeing friendships wax and wane -- is a form of good-bye and is hard.  Remember those seasons of life I spoke of in earlier posts? Sometimes, I want the season for a lifetime -- my lifetime.  Not the natural lifetime of the other person, thing, flower...et cetera.  I ask myself -- is it selfish of me to not want things to end?  Or am I afraid?

Maybe I don't like endings because I am a natural born planner (working on spontaneity in my life) and I can't foresee or forecast the next leg of the journey.  The unknown paralyzes for a time -- until it is known...and then most of the time once I have moved into the next phase I say to myself - see?  This isn't so bad!  In fact, it's better than expected! Maybe my fear of the unknown keeps me from ending things that should have been ended long ago -- like me hanging onto certain projects that haven't been finished for years  that are stored in tubs in the basement.  Or I think about that book I still have next to my bed that I don't want to shelve because I haven't finished it but yet I pick up other books to read instead of reaching for that one night after night.  Endings.  Hmmmm....

Maybe this is what my new approach should be when it comes to good-byes or endings.  Maybe I need to replace my fear-based thinking with possibility-based thinking.  I need to remind myself that with every ending a beginning starts.

If I think in beginnings...and look forward to beginnings...then maybe the endings won't be so scary.